By Dr. C. Evers Whyte
There’s a very good chance that you’ve never heard of “Post-Lyme Disease Syndrome,” even if you’ve suffered from Lyme disease itself. Post Lyme Disease Syndrome (PLDS) is as controversial as it is complicated, and many doctors will assert that it simply does not exist. However, if you have been treated for Lyme disease (LD) and still feel ill, you know, along with a growing group of medical professional, that PLDS is in fact, dreadfully real. And much like LD, PLDS manifests and presents itself in a variety of ways that can make it difficult to decipher and therefore treat. Sadly, many Lyme experts believe that the generally-accepted assessment and treatment practices are woefully inadequate. The good news, however, is that more and more doctors are recognizing the realities of PLDS and better still are having success treating it. There is hope!
HOW IT ALL STARTS
To truly understand PLDS we need to begin with an understanding of LD’s basic biology and how doctors in the US have been directed to view and treat it.
LD is caused by a strain of spirochete bacteria called Borrelia burgdorferi. Unfortunately, a majority of doctors, contrary to both empirical findings and a large body of research, stubbornly insist that once LD is treated with the Center for Disease Control’s (CDC) recommended 21-day course of antibiotics, it should be considered cured. Therefore, patients still experiencing symptoms are too often dismissed with a diagnosis of psychosomatic post-Lyme rather than an ongoing infection, or a set of very real physical ailments stemming from the Lyme disease and probable co-infection(s).
There are several studies that refute this outdated protocol for LD treatment. One in particular suggests that an estimated 30% of Lyme disease patients do not recover at all after being treated with the CDC recommended antibiotic protocol.
In addition to this, it is unusual to contract only one infection from a tick bite. Co-infections are rampant: Borrelia; Erlichia; Babesia; Bartonella; Micoplasma; and Rickettsia are all prevalent in the northeast, and most ticks are infected with these disease causing bacteria along with the one that causes Lyme. Still, many doctors don’t test for these co-infections, or look deeper into the patient’s whole picture for breakdowns in various other bodily systems, triggered by these infections.
To make matters even worse, doctors are under an enormous amount of pressure to argue against the existence of chronic Lyme infection because the insurance industry doesn’t want to pay for the ongoing treatment necessary to rid these unfortunate souls of the tenacious infection(s).
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